I need to faint!

I can't sleep! I need to faint! My social security number is 114-7666-52 and I live at 6816 Perkins Drive Raleigh North Carolina 27612. okay if you found those people who want to put me to sleep after drinking alcohol and after drinking so much coffee and eating dried fruit I am now ready to go to sleep. I need someone to put me to sleep. I have the best life/voice/house and I am the wealthiest person in the world.
purple lady

(no subject)

wow, I'm sad that this group seems inactive as I just found it but..

it is weird that I found it today because I have spent the last 5 days home sick because of my fainting spells and general crappiness.

I have been diagnosed with vasovagal syncope since I was 12 and I fainted from my period. I did this almost every time until they put me on depo for a year. I am off it now, but I seem to have grown out of this problem. I faint whenever I get out of a hot shower/bath sometimes, whenever I am stressed beyond belief and when I don't get enough sleep. I have some other random triggers like when I don't get enough water and such... but those are the big ones.

sometimes when i have a real bad episode i have had a seizure like symptom where i shake and see colors. i have been told by doctors that this is due to lack of oxygen to my brain.

i have been through a million tests. heart tests, brain scans, tilt table etc etc...

it has been mostly under control until the other day and the last couple days i've been having black outs =/

and i was surfing the internet to see if its my thyroid issues... maybe? and i found this group

weird huh?

i can't sleep. i am exhausted. it is 5 am & i have not slept. yet i lay here wide awake.


(no subject)

Hi I just found this community and I was diagnosed with Vasovagal syncope when I was 11 years old. I have fainted more times than I can remember. Sometimes with some warning, but usually not. I am currently a Senior in high school and have missed so much school because of this, and lately because of some stomach issues (possibly IBS, Celiac Disese, or something else) I am having. I also have had Vertigo for the past two months constantly and take Valium for it. I feel so helpless and don't know what I can do. Everyday I take so many medications but nothing seems to make it better. I get scared just going out to the store or driving anywhere, because it could be the day that I have an episode and pass out at the wheel and I fear this so much.

Does anyone else have problems like this and know what to do?
I am completely clueless.


I've just joined this community. I have vasodepressor syncope, EDS and RSD. I got finally diagnosed last yeah by Prof Mathias, but my local drs are refusing me the tests and treatment he said I needed. Having had an episode last night and about to update my LJ (which is more of a MJ (MoanJournal) these days) and did a quick search of syncope and found you guys.


  • Current Mood
    exhausted exhausted
  • zoe_me

bad blood pressure day

Nothing like a low bp day to make a person go look up the LJ support group.

I will skip my VVS history for another post.... but what tricks to people have to boost their blood pressure on days they feel sluggish? I have tried elevating my feet and taking a Sudafed decongestant. And drinking at least half a diet Red Bull. I am still feeling completely drained.
I can't think of any other tricks from my cardiologist. I am also wondering what could have set off this episode. I worked out last night... hot bath?

Mostly I am looking for sympathy and understanding on how some days you wake up and know "I probably shouldn't be driving today, and getting anything done is going to be a struggle".

-Zoe, whoes heart stops in 7 minutes on a tilt table test
preach the Gospel; if necessary speak


Dear Sirs and Madams,

read my e-mailCollapse )

Hey Kate!

Got your emails...thanks for making us aware of this! I'll do some reading up as this is a new one for me...

Hope you are hangin in there and love the myspace tune you have :-)


Mike LeBaron

For those of you who don't know who Mike LeBaron is, he is a disk jockey for the great Chicagoland radio station US*99.5. I contacted the radio station and the individual DJs last night in the hopes that since they are always doing something great to help great causes, they could at least mention and help spread awareness about Dysautonomia. I am so ecstatic and excited about this! It very well may actually happen!!!!! It can change people's lives...I'm so hopeful ♥
  • Current Mood
    bouncy bouncy

(no subject)

hello! I just found this community.

I'm Amanda, and i have NCS, I was diagnosed with it little over a year ago. I've only had two episodes, but some very close calls. I know when to say i need to sit down and cool off. i've actually sat down in line at a store to avoid a spell. I'm currently taking Toporol.

Yeah so, i've been learning more and more about this condition ever since i was diagnosed. I knew about some of it because my mother has it, and one of my side effects is seizures, does anyone else have that problem? I've noticed that not many do, or at least to my knowledge.

Anyway, i just wanted to say hi!
preach the Gospel; if necessary speak


Hey everyone, I was trying to think of things we can do to get Dysautonomia awareness out there in LJ-land. Anyone have any ideas just to throw out as to things we could try and do? Just trying to get the ball rolling :-)

  • Current Mood
    hopeful hopeful