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For those affected by fainting

As sufferers or those who know sufferers

Name:
For those who faint, or know someone who does
Membership:
Open
Posting Access:
All Members , Moderated
Fainting can be terrifying- both for the person, and for bystanders. Some people only faint once in a life time, but others do it on a daily basis.

It goes without saying that there are countless conditions which cause a faint, and several different types of faint.

It is notoriously difficult to find experts who can help manage faints, and the Doctor who understands the impact of fainting on day to day living is a rare individual indeed! but such people do exist, and it is increasingly possible to obtain an accurate diagnosis, as research is ongoing. (I personally waited eleven years! Better late than never!)

Here, we don't judge anyone, or their circumstances, but rather offer a refuge for anyone who faints, or knows someone who does. Fainting can be very isolating--especially if those around you cannot imagine how it feels. This group will hopefully help to dispel some of that isolation. Making cntact with other people who can empathise can be a very positive and useful experience.

Fainters_unite is about exchanging ideas: Constructive information and suggestions are always welcomed- if you've tried a treatment that works, why not tell us? That way you might be able to help someone else. If you have any information, insight into new research too, feel free to share!

But it's also about being able to just talk to other sufferers. So feel free to vent and let off steam, share experiences etc.

Some useful resources include:

Dysautonomia Youth Network of America http://www.dynakids.org/what.jsp
Dysautonomia Information Network, offering info on POTS, NCS, PAF, MSA http://www.potsplace.com
Syncope Trust of Great Britain http://www.stars.org.uk
Heart Rhythm Society (US) http://www.hrspatients.org/
British Heart Foundation http://www.bhf.org.uk/
Ashley Joly Sudden Adult Death Trust (UK) http://www.sadsuk.org/
Cardiac Risk in the Young http://www.c-r-y.org.uk/

If you want to add any more that you know of, then feel free!

We are proud to present this poem by one of our members, star382000, which sums up the predicament of many here:

The Reason For My Purple Backpack

You see her from time to time
Waiting at the elevator door
Glaring at the purple bag
And for a brief moment wonder what for
Well that girl is me you see
And I have something that's hard to explain
It's called Postural Orthostatic Tachycardia Syndrome
And causes a lot of inner pain
It takes away my energy
And causes me to almost faint
It makes my heart work too hard
And induces physical restraint
There are lots of things I cannot do
Like many things you take for granted
I can't run or just simply wake up
I can't take the stairs or dance
If I stand too long I have to sit
And the life I knew was stolen from me
With this handicap I don't know what to do
Or even who I am anymore
But one thing I know is true
I'm still the same as you
I have drama with friends
And parents galore
I have dreams and expectations
And hope for more
More to life and that never-ending search to find yourself
But with POTS that all just takes a back shelf
So before you snicker and you laugh
Know it could just as easily be you
Who has to drag a purple backpack
__________________________________________
addison's disease, anoxic seizures, anxiety, autonomic failure, autonomic nervous system, betablockers, breathing difficulties, british heart foundation, broken bones, bruises, cardiologists, cardiology, catecholamine, cold, collapse, compassion, concussion, depression, doctors who do listen, doctors who don't listen, dysautonomia foundation, eds, ehlers danlos syndrome, empathy, epilepsy, fainting, headaches, hitting the deck, hyperadrenergic state, inappropriate sinus tachycardia, indpendence, isolation, ist, long qt snydrome, long qt syndrome, losing consciousness, low blood pressure, menstruation. hormonal imbalance, migraine, mobility problems, national epilepsy network, ncs, neurocardiogenic syncope, neurologists, neurology, p.o.t.s, paleness, pallor, panic attacks, postural orthostatic tachycardia syndrome, pure autonomic failure, reflex anoxic seizures, reyanuds disease, shakes, shy-daeger syndrome, students, supra ventricular tachycardia, svt, syncope, syncope trust, tachycardia, temperature sensitivity, tilt-table tests, tremulousness, understanding, university, vasovagal syncope, ventricular tachycardia

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