Hello, my name is Kate and I am contacting you as a member of a youth organization called DYNA, The Dysautonomia Youth Network of America. More importantly, I am contacted you as a teen patient who has been diagnosed with a form of little-known group of disorders under the category of Dysautonomia. I am not asking for donations or for you to tell about a marathon being done for this great cause, but instead I am asking for a simple mention of this group of disorders to help spread awareness. One of the saddest things about being diagnosed with Dysautonomia is the fact that many doctors do not even know about it, so the process of being diagnosed is a long, tedious, often depressing process wrought with even doctors telling children that what they know is wrong with them, is all their imagination. You can learn more about Dysautonomia at DYNA's website, http://www.dynakids.org If it be possible, I will glady answer any questions or speak to whoever I must to help spread awareness. All it takes is a simple mention to spark curiousity, and maybe help change some lives forever. Please feel free to contact me via e-mail at Star382000@aol.com . I am also contacting others associated with your great radio station. Thank you for your time.
With utmost thanks and sincerity,
Got your emails...thanks for making us aware of this! I'll do some reading up as this is a new one for me...
Hope you are hangin in there and love the myspace tune you have :-)
For those of you who don't know who Mike LeBaron is, he is a disk jockey for the great Chicagoland radio station US*99.5. I contacted the radio station and the individual DJs last night in the hopes that since they are always doing something great to help great causes, they could at least mention and help spread awareness about Dysautonomia. I am so ecstatic and excited about this! It very well may actually happen!!!!! It can change people's lives...I'm so hopeful ♥